Forgotten Diseases Research Foundation

Calculator for weight in children with ataxia-telangiectasia

This calculator gives syndrome-specific percentile and a standard deviation scores for people with ataxia-telangiectasia (A-T). Data was gathered from records at the Johns Hopkins A-T Clinical Center, Baltimore, and is based on measurements from 400 people with the classic form of A-T. (1) All results are compared with the CDC's growth data for the general population.

Important: our A-T weight data goes to age 23.0, but the CDC data only goes to age 20.0. To help make rough comparisons for ages 20-23, we've used the CDC's values for age 20.0 for ages 20.1 to 23.0. Bear in mind that CDC percentiles for ages older than 20.0 will be slightly inaccurate.

We also have a height calculator and a BMI calculator for A-T.

Please enter the following information about yourself or your child. We don't see, record, or keep any information you enter here.

Basic information





Select syndrome from the list below. For convenience, the CDC's data for the general population are included with all results.

Important notes:

  • You can enter 1 year, 1 month, or 13 months.
  • Entering 1.25 years won't work.


  • Enter 1 to 5 measurements at once.
  • Please include zeros, as in 0 years, 8 months or 2 years, 0 months.
  • For size at birth, write 0 years, 0 months.
  • In measurements, write 1/2 as 0.5
  • In measurements, write 1/4 as 0.25
  • In measurements, write 3/4 as 0.75




  Years:     Months:                  Lbs      Kgs  
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  1. 1. Natale V et al. (2021) Growth in Ataxia Telangiectasia. Orphanet J Rare Dis In press.

Page last modified on 5 April 2022