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We're a small organization striving to provide health information and analytics software for free to anyone witn an internet connection. Please consider making a donation to us so that we can continue our work. Thank you. The Forgotten Diseases Research Foundaton is a 501(c)3 nonprofit organization, and all donations are tax-deductible.

Important note

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New software!

Height calculator for ataxia-telangiectasia
Weight calculator for ataxia-telangiectasia
New software for comparing rare diseases (direct link)
New software for comparing rare diseases (information)

Publications

Growth in Ataxia-Telangiectasia
Xeroderma pigmentosum-Cockayne syndrome complex
Worldwide variation in human growth the World Health Organization growth standards
A Comprehensive Description of the Severity Groups in Cockayne Syndrome

New syndrome information

Kyphoscoliotic Ehlers-Danlos syndrome has been updated
Arthrochalasia Ehlers-Danlos syndrome has been updated
Hypermobile Ehlers-Danlos syndrome has been updated

New growth curves

Cuba
Peru
Tunisia

About growth curves

Growth Chart FAQ
Growth of Children with Special Needs

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Page last modified on 5 April 2022.